The Huntington’s Disease Parity Act  (H.R. 842/S. 968) will improve access to Social Security Disability benefits and Medicare coverage for individuals with Huntington’s Disease (HD). The legislation will …

*  Direct the Commissioner of SSA to revise its outdated medical and evaluation criteria for determining disability, thus enabling individuals with HD to receive the essential disability benefits that they are often denied.
*  Waive the Medicare two year waiting period, thereby ensuring individuals receive critical health benefits and care in the early stages of the disease.

Because of work from advocates like you, we achieved one of our goals! The Social Security Administration has finally updated the guidelines to reflect what we know about Huntington's disease, that it's disabling not just because of the physical symptoms, but the cognitive and behavioral symptoms as well. But, we're not done yet...

Now, more than ever, we need the HD Parity Act passed. We need Congress to act to waive the 2-year Medicare waiting period for individuals with Huntington's disease, and allow individuals who are disabled due to HD access to the care they need, when they need it. 

Don't wait a minute longer, send your Member of Congress a message today to pass the Huntington's Disease Parity Act! 
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